A friend posted this picture the other day. It immediately reminded me of what we've been through the last 4 months. It's been a crazy ride, but it has made us all stronger in every way. People mention how hard it would be for them if they were in our shoes, but when you are in the situation you only have two choices; fight or give up. We choose to fight for Kass, monetarily, physically and emotionally. We will do what we have to do to get her better.
Sometimes it's so hard to explain to strangers that your daughter has the Big C. Cancer, such a dirty word. It took me awhile to actually be able to say it.
I do mostly admire all that Kassidy has endured, given up, and experienced, but still has time to smile. My girl is being tested for some reason, but I'm proud of how she's dealing with it all. Some days are good and some days are bad. But she's doing a hell of a job.
Lately, Kass has been doing well. No headaches, nausea, she looks better and is even handling the dose changes well. Thank you GOD! It's a breath of fresh air to see her look more alert and even feel better. School has been going pretty good for her. The 2 classes per day seem to be the magic ticket, she's tired, but not exhausted like before. I have been increasing the doses every 3 to 4 days depending on how she handles each. We are 410ml in bag 1 and 40 ml on bag 2. I'm hoping in two weeks we can be up to the maximum dose again.
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| Haven't seen her pet Lala in awhile I think Lala appreciated it! |
We feel so much less stress when she's things are going well. Didn't realize what a mess we were weeks before until I read some of my previous posts. But I guess this ride is just gonna be like that. There will be ups and downs and we will just take them one at at time.
Last Tuesday, we went to help out feed the hungry at the Las Vegas Rescue Mission just to start paying it forward. We hope to little by little be able to do this in the future. We are indebted to many of you and want to somehow balance out amazing acts of kindness we have received from all of you. I think it was great for Kass also to see that others struggle in different ways. At that moment, she forgot about her own problems and focused in helping others. One of the greatest gifts about serving others.
We had another appointment with the gastro doctor and we told him since she's been doing better with her stomach I might want to cancel the endoscopy for the 21st of this month. I don't think it's necessary to put her through that if it's she's not having the bad stomach aches. We have till next Monday to make that decision. Dr Milne gave her some drops to take that coat her stomach and we changed her to prilosec to help her protect her stomach better while taking the steroid.
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| Ryan teasing Kass at the gastro doctor's office |
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| I love this pic! |
Still fighting with insurance about the PET scan we need to schedule to check Kassidy's new lesion on the right side of her cerebellum. The PET scan will determine if it's a new active site or not. I'm getting a big ansy to find out soon. Hopefully tomorrow I can finally make the appointment if insurance has approved it. Please keep us in your prayers that they have and it's not an active site and just part of the breakdown of the tumor.
Ryan stayed home with me on Monday to help me out organize and pay some of the medical bills. Ugh, not so fun, but he helped me get caught up quite a bit.
I've been so busy getting all the details ironed out for Kassidy's Army 5k Run & 1 Mile Family Walk on November 12th. Wow, never new all that went in planning an event like this. Special Event Permits, right of way permits, insurance, barricade company, cops to direct traffic, park reservation, timing company, tshirts, medals, raffle prizes, ha a mouthful right! Well, we are getting closer and I think it will be a great time. Please help us spread the word on this event. Our goal is to have at least 200 participants. Families are welcome. The race/walk start at 9:00 am, but make sure you register early before the fee goes up. Here is the link:
http://www.imathlete.com/e
1 comment:
I've been thinking a lot about you guys lately. So glad Kassidy is feeling better. I just wanted you to know we are following along and keeping you in our prayers. Love you.
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