October 17, 2011

Overwhelmed and frustrated is what describes Tuesday through Friday of last week.  I have not felt that type of stress since those first few weeks when we started this nightmare.  It seems like everything has been piling up and we make one step forward and two steps back.

It has been a week, since I've updated the blog and we still do not have an appointment set for Kassidy's PET Scan.  UGH!  Every time I call I get a different story from them.  I just wish we could move forward and find out once and for all what this new lesion found in the last MRI is all about.  Waiting just makes our minds wander..... not so fun

Also, last Tuesday night we found out Kass has been struggling at school.  She's been doing well attending the 2 classes per day, but I guess missing those 3 weeks when school started was just too much and has put her behind.  This makes me so sad, since I know she's trying so hard.  Ryan spoke to her counselor and we have meeting with all teachers to discuss our options.  Also, tomorrow we go for her test results from the psychologist to see his suggestions on what we should add to her 504 school plan.  Wish us luck!

Kass also has been struggling with her morale.  The other day she asked me if I thought her tumor would ever completely go away.  I did not know how to answer! How do you answer your daughter when doctors don't even know the answer.  I can't even imagine what my baby girl really feels or what goes through her mind everyday.  I just wish that I could take it all away.

All we have, is to trust in God, he is the one in complete control.  Sometimes hard to swallow, but it's the reality of the situation.

Saturday brought a different note.  We went to help out at the Albertsons on Buffalo and Flamingo our friends Phil & Tracy who organized a Car Wash & BBQ at the parking lot area by the store.  Always such a great time meeting generous and giving people.  Our favorite was an old man who wanted to hug Kass so his good energy would rub off on her because he said he had great genes and had never been sick a day of his life.  What a sweet man!  He attributed his good genes to his native american blood.

Gotta love Cindy getting down and dirty

Thanks to the Firemen Explorer Boys

Ely & JJ they are great

When we got home that day a great surprise awaited Kass in the mail.  Her friend Amber (same diagnosis as Kass and lives in Florida) attended an FSU softball game and while she was there she had the whole team sign a softball for Kass.  Loved the light in Kassidy's eyes as she saw the ball.  Thank you Amber for thinking of Kass, she loved it.

Signed ball by FSU Softball

All the players signing it.

On Sunday, we got the chance to get Kass into the Driver's Edge Driving Program here at the Las Vegas Motor Speedway.  This is a free defensive driving program taught by race car drivers to teach teenagers on how react to scary situations.  A bit ironic since as we were there, Dan Wheldon lost his life in a Indy Car Race that was being held right next to us on the track. We listened as the cars came to a stop and life flight helicopters came to the rescue.  Very sad! Another reminder on how short life can be.  God bless his family and friends.

Kass tag

Kass learning how to control a car when it goes into a spin as you can see the helicopter at the track

Here is the link to those interested in the Driver's Edge program, they tour the country and they might make it to your neck of the woods.

http://driversedge.org/

This week I please ask you to keep us in your prayers that we soon get an appointment for her PET Scan and that everything goes well on the endoscopy she will undergo on Friday.