It started this past weekend when Kass felt great, she had great energy and just looked good! She'd had a rough past week with finals and stress, but during the weekend was able to catch up with some school work she needed to finish for missing school from her surgery.
Monday, came with a little bit of anxiety since we had a follow up appointment with our local oncologist. Last time we met with him was last July, right after we came back from Houston. He really did not agree with the antineoplaston treatment we chose for Kassidy, but he respected our right to choose the treatment we believe is right for her; unlike our first oncologist here in town. We were suppose to go see him every 3 months, but we've been so hesitant.
Anyways, the appointment went better than what I ever expected. He was impressed with Kassidy's 20% reduction thus far, her neurological test improvement since the last time he saw her, & that she's doing well of decadron (steroid). He commented on how good she looked many times. This made Kass & I smile beyond belief. He did say he would like to see her every 3 months and if we need anything to please not hesitate and call. Ok, ok we won't wait so long between appointments.
By the time we got to the car we were dancing the jiggy and smiling from ear to ear. I'd say "mission accomplished"! Hope that we have started to pave the way for future pediatric cancer patients.
Today was another great day, Kass was back to her first bowling match since her port/catheter surgery against Shadow Ridge HS, which we won! It's been a bit of a challenge to practice bowling since her port site has been quite sore still, so she cannot wear her backpack on her left shoulder; she's been bowling holding her backpack with her left hand. But we found a sling backpack that did the trick today, that she can wear across her right shoulder. Success!
Centennial HS Girls Bowling Team (Ugh she's hiding from me) |
Varsity Girls ready to Bring It! |
Please come and join us for EITHER event, the play is only $10 at the door & to participate for the run $22 or walk $20. Your participation will help Kassidy and other kids fighting life threatening illnesses.
To register for the run or walk click this link:
http://www.kintera.org/faf/search/searchTeamPart.asp?ievent=1000585&lis=1&kntae1000585=04D18E427AD344E98EF8DD70903261B9&team=4930563
We also would like to ask to keep Gage in your prayers. His MRI is tomorrow and we are all hoping for great news. Little Gage is the one that started antineoplaston treatment same time we did. This baby has been fighting off and on for a long time. It's his turn.
We also want to share the great news with you about other Burzynski patients we have kept contact with:
Laura's tumor has shrunk an amazing 56%. Check out the video! Amazing! Way to go Laura.
http://www.hopeforlaurafund.co.uk/blog/item/interview-with-dr-burzynski-about-laura
Hannah tumor has also started shrinking and she's only been on treatment barely a month. Check out her video.
http://teamhannah.com/blog/
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