May 16, 2012

So I sit here with an upset stomach and anxiety as I think of what's to come in the next couple of days.  I can't help, but be worried about things I cannot control.  I pray that God gives us peace and strength to face whatever is in store for us in the future and that everything will work out.  I've learned that faith carries you a long way and we leave the future in God's hands.

We have seemed to have stalled in the weaning of the decadron, we are stuck at a 1/2mg in the morning and 1/4 at night.  I guess that it's just what her body needs right now.  Baby steps! She's been doing well on this dosage, but has been having a hard time with the heat.  It seems that the Vegas heat drains her and also dehydrates quite a bit.  Thank goodness our doctor has upped the hydration bags per week, which is kinda a hassle for Kassidy because she is hooked up to either an IV fluid bag or her ANP medication for a lot of part of the day for 2 or 3 days a week.  She is not getting her almost hour and 45 minute break in between treatment like she usually has. She has to roll her IV pole while on the IV fluid bags and she feels she looks way worse off than she is while rolling that pole around the house.  She says she looks like the sick cancer kid with the pole.  We assure her that all this is temporary.

We are just thankful that Vegas has not gotten any hotter yet especially since the Centennial Softball girls made it to Regional playoffs; so this past week they played almost everyday which wore Kass out.  But she was excited to be there to watch her team win Region.  Ryan kept her home last Friday to just give her fluids all day which got her ready to watch her team to victory on Saturday since I was in Boise picking up Kyle from college.  Our boy finished his first year of college!  We are so proud of him.

All smiles!

Coaches Celebrating Region Win!

Region Champs!!!

Each girl kissed the trophy person that broke! Ha not sure why.

When Kyle and I got home Saturday evening, Ryan proceeded to tell me that he needed to tell me something, but not to friek out.  Oh oh, this is never good news!  He said that morning while Palo Verde was warming up that one of the girl from their team tripped and threw a wild throw into the dugout and hit Kassidy right in the back of her head right by her incision.  OH MY GOSH!!!  He said her team members and coaches all ran to her.  Ryan immediately checked her out and other than a headache seemed ok.  They checked her throughout the whole game and she even mentioned that evening that she hadn't felt better in days.  Wheewwww! It could have been worse.  Man of all kids to hit in the dugout......

We want to thank everyone that helped out with Kassidy's fundraiser two Saturdays ago.  We had planned a car wash, but the Texaco on Durango and Centennial wasn't allowed to do a car wash so the volunteers stood the corners and also sold Kassidy's Army gear.  It was a great success and we are so thankful to each one of you that volunteered and donated to our girl.  Always so great to see all those to come out to support; coaches, parents, cheerleaders, dance fusion girls, softball teammates, and whoever I missed.  It was also so great to see some of the Foothill softball girls make the trek all the way over to our side of town to spend the day with Kass.  Thank you!

Softball Girls!

Girls working hard!

Kass and her friend Pamels that made the trek across town.

This week the Centennial softball girls are on their way to Reno to play in the State Championships.  I feel almost dejavu.  This was the case last year, but the first day of playoffs last year, Kass was in a hospital in for brain surgery.  This year she gets to be there for her team.  We leave tomorrow for Reno so she can be part of their great accomplishment, she's so excited.  I hope they make it all the way to the championship on Saturday.  It will be a great way to celebrate one year since she was diagnosed.  Oh Saturday, please be kind to us.  Cause I know this mama will be a mess.

Yes it's a crazy week, so on Sunday we leave for Houston.  I am asking for a prayer request for Sunday at 11:00am.  I ask everyone who prays to please say a prayer for Kassidy on Sunday at 11am Pacific Standard time for our little girl.  This trip to Houston is so important and can change our world.  Thank you in advance!!!