July 4, 2011

                    ˜˜”*°•.¸☆ ★ ☆¸.•°*”˜˜”*°•.¸☆

                      ╔╗╔╦══╦═╦═╦╗╔╗ ★ ★ ★

                      ║╚╝║══║═║═║╚╝║ ☆¸.•°*”˜˜”*°•.¸☆

                      ║╔╗║╔╗║╔╣╔╩╗╔╝ ★ 4th of July!!!!!! ☆ 2011

                      ╚╝╚╩╝╚╩╝╚╝═╚╝ ♥￥☆★☆★☆￥♥ ★☆

from

Kassidy & I

                       Bag 1 & Bag 2 connected to the pump that administer the 6 doses every 4 hours.


On Sunday, we took Ryan and Kyle to the airport so they could go back to Vegas.  We sure miss them already! But Ryan had to get back to work and Kyle has to continue his cross country training.  He has to report to Boise State in just a little bit over a month.  Ugh! I don't even want to think about that right now, it's just another jab at my heart every time I think about it.
Well, that same day Kass & I had a really long wait at the clinic since all the patients came all the same time for their treatment that day. Each new patient has to come every single day like us to learn the steps for at least two to three weeks.  The staff is very friendly and patient and they feel like repetition of the procedures are really the best way to learn. I also don't mind waiting since I like watching the nurses work on different patients and try to learn that way as well.
There are patients of all ages from all over the United States that are in the same room as us every morning.  Each of them with a story of their own, two of them battling breast cancer which one of them has  been battling for 6 years and this is her last chance, others brain tumors, and lymphomas.  When I watch them I can't help but feel admiration for their courage and perseverance.  On the walls of the rooms are lined with collages of kids and adults that have been at Burzysnki and beat their cancer.  What joy it brings me to see their pictures that tell their stories of their successful battles.  More than anything,I long for the day to see Kassidy's story someday displayed in these walls as well.
Today went a lot smoother and I got to unhook Kass from her catheter this morning for the first time.  Boy was I nervous!  But got it done and she was able to take a shower by taping the port area with some plastic wrap around it.  At the clinic we were in and out in less than an hour and half and came back right away cause Kass was exhausted after.  She slept for about 5 hours.  When she woke she was bored so we decided that we would go see a movie at the CityCentre Moxie Studio Grill, a movie theater/restaurant/bar.  What a concept!  Her and I thought it was pretty cool, but we did not eat there since these days Kass is on a pretty strict diet.  
Kass diet does not allow her to go over 2000 mg of sodium a day.  The ANP (antineoplaston) has a lot of sodium in it so she has to watch her intake of sodium so she doesn't damage her liver.  That said, almost all restaurant foods have an exorbitant amount of sodium in their foods. I had to download an app on my phone that shows the nutritional values of each restaurant, it was eye opening how much salt we eat.  Also, we are fortunate to have all kinds of health food stores around the area and we bought almost all organic for her and foods high in potassium.  I want to make sure her body stays strong through the treatments so we also walk every night.
Tonight after the movie got out it was great cause we had perfect timing.  As we got to the bottom of the exit escalators the fireworks show began.  We stood there and watch the whole show which was awesome, they had a band and show at the same time.  We then walked back to the hotel.  Good night all, tomorrow is a new day!