Follow by Email


We are very sad to report that there is a young man going door to door in the Las Vegas area representing himself as part of Kassidy's Army. We would NEVER go door to door asking for donations, please call the police or email us at See official fundraisers below!

Wednesday, August 31, 2011

August 31, 2011

     Well, I forgot to mention that Kassidy is now on natural anti-inflammatories as of last Friday after we met with Dr. Milne.  We have decided to add Kaprex and Arthro-Complex with Boswella to start acting along with decadron until we completely wean her of the decadron.  We will start reducing the dose of the decadron this weekend by 1/2 mg per week until she no longer is on it.  Let's cross our fingers and toes that the natural supplements work strong enough to keep the swelling down of the brain so she has no seizures.
Kass's Medical Supply Closet now all done! BTW this a month's supply.

Today, was a bit of a sad day since all of our family has gone home now.  It was so nice to have them with us for support.  But, I did stay busy today organizing Kassidy's supplies so they can be a accessed and inventory can be done much easier every day.  I also made sure we start scheduling all her doctor's appointments and school functions; all the fun stuff that comes with the beginning of a new school year.
2 week supply of Medication!

Her medication, I will keep in the boxes that they come in every two weeks since we go through it pretty fast and it's not the best smelling stuff.  We noticed the strong smell when we first toured the Burzysnki Clinic that first day of our appointment, not realizing that smell would permiated through Kass and now the house.  We no longer smell it, but the first few days of infusion we did.  We now associate smell with the smell of Hope & Wellness.

Starting tomorrow, commences Childhood Awarenes Month! Please pay attention to these statistics, it can even happen to YOUR child.

- 46 Children are diagnosed with cancer every school day
- 7 Children die from cancer every day
- Chilhood cancer kills more children than all other diseases combined (AIDS, Cystic Fibrosis, Diabetes, etc)
- One person out of every 330 will be diagnosed with cancer before they are 21
- On average 1 in every 4 elementary schools has a child with cancer.  The average High School has two students who are current or former cancer patients.
- On average the treatment of childhood cancer is two years.
- Cancer treatment in childhood causes effects for the rest of the life of the child and makes the child at a greater risk of developing cancer a later age.
- Childhood cancer is very underfunded.

Please keep in mind those children who are now fighting and those who have lost their battle with cancer this month.

Here are friends of ours that are battling now, please keep them in your thoughts and prayers.

Brain Stem Ganglioglioma (same diagnosis as Kass)


1 comment:

Jacque Stark said...

My dad was diagnosed with gbm IV. We also went to Houston to Bryzinski(sp) Clinic as conventional medicine didn't offer any hope. When you mentioned the smell of the clinic and medicine, I could smell it "in my mind." Will never get that almost urine-y smell out of my head. We were getting a good "burn" on his tumor when he developed pulmonary emboli and we had to stop the IV treatments and were never able to catch up. I wish you courage and success in your fight.