November 7, 2011

Well, today makes 5 days till the 1st Annual Kassidy's Army 5k Run & 1 Mile Family Walk.  I have butterflies in my stomach every time I think about it and hope it all goes without a hitch.  It's all coming together and cannot wait.  We have great raffle prizes, beautiful silent auction baskets, great looking medals for those who are timed, we will have food & drinks after the race.  It will be a great day for the whole family.  Online registration will be open till this Thursday at 7:00 pm.

Here is the link: http://www.imathlete.com/events/KassidysArmy5KRun1KWalk

We will have packet pickup at Fleet Feet Sports on Buffalo & Washington by Trader Joe's.
Friday from 11:30am - 1:00pm & 4:00pm - 7:00pm
You can also register at packet pickup or the morning of the race from 7:00am - 8:15am.
Opening ceremonies start at 8:30am & Race starts at 9:00am sharp

Hope to see you all there!

Kass has been doing well overall.  We've had a few issues with her hemoglobin, these last two weeks; it has been on the borderline low side.  We will keep an eye on this since if it gets under 8.4 she might need a transfusion to correct the problem.  Hoping that's not the case!  Doctors will order some other test to test her levels of iron, vitamin levels and to rule out internal bleeding (very unlikely).

Also, last time I cleaned her port I noticed that she lost both stitches holding her catheter, this concerns us since a big tug could pull the catheter out.  I now have to measure her catheter from the insertion site to the end to make sure it's not getting longer.  If I do see change then we will have to take her to get an x-ray to make sure the port is still in the correct place and get her stitches put back in.  Meanwhile, I make sure it's properly taped down to help it so it doesn't move much.  We don't want to put her through a new insertion of a new port/catheter.

SIGH!!!!!!!!!

This last week she also started with bowling lessons again, to help her get ready for bowling season.  She's a bit frustrated that the backpack hinders her bowling, but we are glad she's trying.  She will have to learn to bowl with her backpack on, so it just will take a little time to get used to.

Kass getting her groove back bowling with her backpack full of medicine

Kass and bowling coach

On Saturday, Ryan and I got to attend the ITU Long Course World Championship Triathlon that a friend was participating in.   Unfortunately, the swim was cancelled since it was so cold that morning and they were afraid of possible hypothermia on the athletes.  We volunteered at T1 (transition #1 swim to bike) tear down.  Wow, that was hard work!  We got a bunch of volunteers to help us and they all worked very hard and we got it done in record time.  By volunteering at this event we were able to get a donation for Kassidy's Army from the race directors.

Volunteers for the ITU Long Course World Championship T1 tear down Rockstars

That night we took Kass with us to do some tailgating and watch UNLV vs Boise State in football.  Let me tell you we had a hard decision to make.  Do we support Ryan's alma mater or Kyle's, hmmmmmm.  Anyways, it was a great game and Kass hunged for a little bit after half time.  We were grateful that she got to enjoy the game a bit.

Us at the UNLV tailgate, notice I snuck my Boise State shirt underneath.

The best part of this week is that Wednesday we off decadron completely! YES!!!! No more steroids after this, we hope.  Please pray that Kass can go through the rest of her treatment without them.  We are not fans!!!