Yesterday started a little deceiving. Kass looked great and she headed off to school with a little of excitement since it was her first bowling match against Boulder City HS. I met her at the Santa Fe Bowling alley to change her medication bag and she seemed really quiet. Watched her bowl all of her 3 games and she told me she would meet me at home. When she got home she layed on the couch and told me that she was feeling very dizzy. I asked her in a scale of 1 to 10 how bad was it, she said an 8.
That's when I proceeded to call the Clinic to ask them what had been the results of her blood test I had dropped of earlier in the morning at Quest. The doctor on call called me back and instructed me to take Kass to the ER because her hemoglobin was at a 7.7, her plateletes were at 440, and her HTC at 23.7. that she would need 2 units of blood, she would need a blood transfusion. So I left my dinner untouched and out the door we went.
While at the hospital they did another blood test to confirm the earlier findings, an x-ray to make sure her port was still in where it should be, a cat scan to rule out any bleeding in the brain, a glucose test to test her sugar levels and gave her an IV bag with fluids. We were told that she would have to be taken by ambulance to either Sunrise or Summerlin Hospital since Centennial Hospital does not have a Peds (pediatric) unit in order to the blood transfusion. Ugh, I knew that! I guess with the craziness of getting out the door I did not think of it.
Well, the blood test then showed her hemoglobin at 9.4, the x-ray showed her port was fine, the cat scan showed no signs of bleeding and her blood sugar levels were fine. WTH! Her dizzines was there still, but not as bad so they gave her a little bit of something to eat; after a couple minutes she started feeling better. We did not understand since she had eaten breakfast and lunch.
So needless to say we still don't know what happened. We don't understand why we keep getting low hemoglobin readings when we haven't changed our method of drawing blood. Today we are waiting on the doctors at the clinic to meet to discuss Kass case and get some answers. Meanwhile she is off treatment and we wait.
Thank you all for you prayers, thoughts and words of encouragement. We are so glad we are not alone in this journey. Sometimes hard to bear, but your kind words give us strenth. Thank you!