September 6, 2011

Kass is back to school today! Hooray!

She was finally able to hold down liquids and food on Saturday morning.  Friday, was still quite rough for her since every time she ate or drank it would all come back up.  But by Saturday at lunchtime she was actually hungry and wanted to eat.  We were so excited.

This is what Kass did all weekend. Her body needed it.

Unfortunately, Kass was not able to attend the Car Wash on Saturday.  She was so bummed she could not at least make an appearance, but it was a very hot Vegas day and she still got dizzy every time she walked around.  Ryan, was able to go help with things at the car wash for awhile though.

Again another amazing fundraiser.  We are so thankful for all that helped and volunteered.  Thankful for Coach Spencer and Karen for all they do for us.  They are angel sent.  Also, to our amazing neighbor, Cindy Drew for sitting in the hot sun all day, the Centennial ROTC, Dance Fusion, some of the Centennial softball girls, Nicole & Natalie Moore and to Wyatt & Earl Burge. I hope I didn't miss any.

We are very excited for Kassidy's next MRI which will take place on September 14, even though this one will take a little longer than the last one that only took 45 minutes.  I guess last time they made a mistake and only did an MRI of the brain and not the spine as well.  Why we were out of there so fast.  Dang! The Burzynski's radiologist wants to see the progress of her tumors also located on the top of the spine so it will take a bit longer.

Decadron dose has been reduced by 1/2 mg in the evening since Monday, and so far so good.  We are crossing out fingers that the natural supplements work their magic.